Friday, October 22, 2010

Friday October 22, 2010

Today we went to see our plastic surgeon, Dr. Strock for another fill. Of all my doctors, he is the one that appreciates keeping an appointment. We are always in and out in 15-20 minutes. We hate paying for the parking garage, but we appreciate him keeping his appointments!

This time when he went to numb me, I felt it! I'm sure I'll get my feeling back right before my next surgery... oh well. He filled my left side with 85cc's and put 60cc's in the right side.

So total now is left 190cc's and right is 310cc's. Sounds like a huge difference but it doesn't look very different.

Next off to chemo. This was our first Taxol appointment. Thank you GOD no more Adriamycin or Cytoxin, that stuff is EVIL!

Anyway, went in to get my blood drawn. I didn't get the phlebotomist I like (and who is VERY good) but I didn't say anything. The lady that I did get tried to find my vein. She must have barely been in there because my blood was taking forever to fill those vials! After I finally filled 4 of them, barely, off to see the Dr. I went.

Only had to wait 10 minutes to see the doctor which was a very pleasant surprise! The P.A. comes in and tells me she has some good news, but it comes with some no-so good news, not bad news.

She tells me that the protocol for Taxol has changed and they are now recommending me to receive Taxol every other week x4 instead of weekly x12. YEAH!
Since I will be receiving more Taxol each time so I really need to watch my symptoms.
Now for the not-so good news. I will have to get a Neulasta shot the Monday following chemo and I will have to have my blood drawn on the off chemo Fridays. I'll take that! The Neulasta shot hurts like a tetanus shot, but I'll take that over chemo any day!
So, if everything goes according to plan, I should be done with chemo the first part of December! Thank you God!

So off to receive my first dose of Taxol. When Nurse Ratched, in mean Janet, called me back, she said she needed 4 more vials of blood. Something happened to the machine she said. She used my port and off they went. Labs were good!
Prior to Taxol comes a Benadryl/Zantac drip. This almost knocked me out! It is used in case of allergies. Since this was my first Taxol, she set the Taxol to dispense over 3 hours... what a LONG wait... Good thing I had Jamey and Luwana to keep me company. Plus I did catch a little cat nap.

Now, on to a prayer request
Jamey's cousin Tiffany's 3 year old daughter Haley, has been diagnosed with leukemia this week. Please pray for Chris, Tiffany and Haley as they go through this difficult journey, along with their parents and all other family members. The journey will be long and challenging and I pray that God leads them in the direction they are intended and when they are in doubt, they trust in the Lord and not turn away from Him.

My journey is a breeze compared to what Haley and her parents are about to endure and I ask everyone to please pray for them.

Love to all,

Tuesday, October 19, 2010

Tuesday October 19, 2010

Found out yesterday (on my 14th wedding anniversary) that my genetic test results were NEGATIVE! What an anniversary present :)

Starting to feel better this week. Of course all that could change on Friday when I go back in for chemo...

Until next time.
Love to all,

Sunday, October 17, 2010

Sunday October 17, 2010

I have no blogged in awhile because the last round of chemo really set me back. Guess that's what I get for thinking it would be like the last 2 rounds and be ok. NOT!
When I don't feel good, I don't want to do anything... talk on the phone, read, or be on the computer. I'm feeling better, but not 100%, which is to be expected.

I did go to my first cancer support group last Thursday. That was helpful. To see other people that have been through cancer and to hear their stories, made me realize I don't have it bad, I just think I do because I'm currently going through it. This too shall pass

Friday the 22nd I have my next appointment with both my plastic surgeon and my next round of chemo, which will be my first round with this new drug Taxol. I'm hoping and praying that the next 12 - 13 weeks will not make me feel bad, just make me tired. I can handle tired, I can't handle all the rest.

Thank you to everyone that has called and checked on me. I haven't taken Jamey's pocket knife to dig out my port like I've threatened... yet. :-)

Tomorrow is our 14th wedding anniversary! So 14 years old tonight, I was nervous as all get out and so excited to be marrying my best friend! I love you Jamey!

Until the end of the week...
Love to all,

Tuesday, October 5, 2010

Tuesday October 5, 2010

Today we went to UT Southwestern for genetic testing, and also went to see the Plastic Surgeon, Dr. Strock, for my first fill appointment. Here's what happened...

I have a 0.9% chance of having the positive BRCA1 or BRCA2 genetic gene. That's good. If I am BRCA1 or BRCA2 positive, two things will happen. One, I will have to have my ovaries removed before I'm 40 and two, my sisters and my daughter will have a 50/50 chance of also having the positive genetic gene. If my test is negative, we won't know why I got cancer, but I haven't asked why yet so that's ok.

We talked about my family tree. She agrees with Dr. Nugent that my family tree is "dull". My family has been called many things, but NEVER dull! The more cancer in your tree, and the more diagnoses at an early age, will make your chances of a positive genetic test, higher. So dull is good! :) They drew 2 tubes of blood, which they will send to Utah, and I'll have my results in 2-3 weeks.

After Jamey and I got a bite to eat, we went to Dr. Strock's office. I have been SO nervous about this appointment. The not knowing how I was going to get filled, was just giving me nightmares. Well let me tell you, it didn't hurt at all!

First he marked the ports in my expanders. My expanders have a metal port in them and Dr. Strock uses a magnet to find them. Next he gave me a little numbing medicine, which I didn't need because I still don't have any feeling there. Then he inserted a little butterfly needle into the port and pushed the saline. He put 100cc's in my right and 105cc's in my left. I can definitely tell a difference.

I was told I would be sore, take Motrin and don't do any heavy lifting for 2 days.
He said he will put approximately 100cc's in every 2-3 weeks. My next appointment is Oct 22.

I feel like I'm leaving something out, so if I think of something else, I'll post again.

My next appointment is Thursday for my last round of Adriamycin and Cytoxin. YAY! I have to wait 2 weeks and then I'll start my 12 consecutive weeks of Taxol. If my schedule doesn't get delayed (pray no sickness or infection) I'll be done with chemo Friday January 7, 2011. Let the countdown begin!

Love to all,